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Post by nyxie63 on May 9, 2008 8:22:37 GMT -8
If anyone has a clue what this might be, could I buy it from you? An easy payment plan would be appreciated. ;D
Had the oddest thing happen last night. Not sure how to describe it, but I'll try.
Was lying in bed and suddenly heard a fluttering wooshing sound in my ears.
At the same time, saw bright flashes (my eyes were closed) and felt electrical shocks going through my body.
Was over in an instant, but it wasn't the first time I've had this.
Any ideas?
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Post by itsybitsyone on May 9, 2008 8:32:36 GMT -8
Sounds much like a narcoleptic hallucination...but certainly you would want to ask a doc....cause it could be anything...I think you mentioned on lymeblog that you had an as of yet unexplained abnormal MRI, right?
What are your options? Having a neurosurgeon or a different radiologist have a look at it?
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Post by nyxie63 on May 9, 2008 8:50:20 GMT -8
I'm definitely looking for another neuroradiologist to take a look at the MRI. Have a couple in mind, recommended by a friend who's dealt with these docs first hand.
Turns out the guy who originally reviewed the MRI specializes in ultrasounds. Neuroradiology isn't even in his list of qualifications. *expletive deleted*
I really hate this town.
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Post by cobweb2 on May 9, 2008 20:15:48 GMT -8
I've experienced that-especially the full body electrical sensation.
Happened most dramatically after taking a couple doses of Lexapro. Took a rather embarrassing ride in an ambulance because the medics considered TIA-transient mini stroke.
My vitals were way off,too.
I have had the flashing lights both ways with my eyes-don't seem to have any retinal tears.
I have heard of this phenomenom in others. Very curious indeed.
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Post by nyxie63 on May 10, 2008 3:05:28 GMT -8
Cobby, that had to be really scary. I'm assuming the ER wasn't any help in figuring out what was happening? What did they do for you, if anything?
My mind won't even consider the option of TIAs. I'm a skeerdy cat. ;D
I've had the full body electrical zaps for awhile now, probably a couple of months. They were really bad when they first started, but have died down some.
They seem to be worse when I'm lying down and are usually triggered by sound or movement. So far, they've been annoying, but not terribly worrying. It was the flashing and fluttering that caught my attention this time.
Guess my health paranoia is catching up with me since the fluttering/flashing never really weirded me out before. Just ignored it.
The thought of mini seizures had crossed my mind, since I have a history of odd things happening.
I used to get what one doc called "pre-migraine episodes".
I'd get the feeling of water in one or both ears. That was my signal to sit down somewhere... fast! I'd then just collapse and couldn't move or talk for what seemed like a minute or so. Never lost consciousness and was fine afterwards.
These went away completely once I started getting full-blown migraines.
The zaps could also be adrenal. Wondering if my startle reflex could be out of whack and sound/movement stimuli are causing adrenaline surges. Then again, I haven't noticed any difference my pulse at all when they happen, so I'm not really sure about this theory.
I'm also giving some thought to the narcolepsy theory since the dreams are still happening and rest isn't restful.
Guess I really need to talk to a doc about this.
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Post by LymeEnigma on May 10, 2008 11:32:36 GMT -8
I occasionally "hear" the ocean in my head, like a quick rumbling, sometimes comes with a moment or two of dizziness. I just always assumed that was associated with the Meniere's.
I don't think this is related to the flashing lights you describe, Nyxie, but I have this strange phenomenon in which I "see" loud noises as flashes of colorful light when I'm trying to sleep in a dark room. For example, if something drops in the other room, I see a quick flash that corresponds with the sound. Different sounds and different volumes produce different colors and patterns.
I also have recently gotten a new type of migraine aura. Instead of the "doughnut of water" I generally see, I have been seeing a "strobe light" in my right eye lately. It is very distracting.
I know nothing about narcolepsy, but I know Nancy has done her homework. I hope you can get to the bottom of this.
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Post by nyxie63 on May 11, 2008 3:20:14 GMT -8
My reactions to external sounds is a whole body electrical shock, but generally only when I'm lying down. Usually no flashes. That's one of the reasons this got my attention.
The strobe has to be annoying to deal with. Never gotten auras with my migraines.
Didn't mean to discount what Nancy has been saying. Not at all. It would certainly answer a lot of questions.
Just how exactly does one go about investigating narcolepsy? Neurologist or sleep study? My GP will order a sleep study if I ask her to (she'll do just about anything I ask for - except a lyme test).
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Post by LymeEnigma on May 11, 2008 9:51:27 GMT -8
I didn't think you were discounting Nancy's advice ... I just thought I'd reiterate that she really seems to know her stuff in this department. I think life experience has been her main classroom.  I bet a sleep study would be very telling. |
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Post by cobweb2 on May 11, 2008 19:36:18 GMT -8
You're right- nothing conclusive from the ER visit.
When I asked my doctor(PCP) about the total body parathesis I think it's called, he just said "Oh that happens when you're sick." !
DUH
I don't care if I never see that Duck again.
Hate to say it, Nyxie , but some of your experiences sound a lot like what got me diagnosed with complex partial seizures. I take Keppra, an anti convulsant. And grateful for it.
People are more vulnerable to seizure activity when going to sleep or waking up.
BTW- all this weirdness started with the Lyme. But is abating with treatment.
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Post by nyxie63 on May 12, 2008 4:13:22 GMT -8
Sorry LE. Yesterday was a poopy-head day for me and it was coloring my perceptions.
Cobby, Glad you're getting better.
I'm seeing the lyme doc on the 19th. Hopefully, she'll have some answers for me.. or at least a couple of referrals.
Btw, I'm going to be away starting tomorrow until some time on the 19th. Will try to update (taking my laptop) but considering the cheap hotel we're staying at, no guarantees of internet access.
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Post by LymeEnigma on May 12, 2008 7:39:41 GMT -8
No worries, Nyxie. I hope that, wherever you're going, you have a safe and pleasant trip. Cobby, are you talking about the hand and foot numbness that comes with puking too long (I always get that when I get the sick bouts), or something different? I had no idea you experienced complex partial seizures. Absence seizures are a type of partial seizure; I've wondered before if there was a relation between that and Lyme. I know I've read of children with Lyme sometimes getting actual grand mal seizures ... on that note, I wonder what the instance of adult seizure disorders and borreliosis is.... *edited to correct the fact that I'm a spaz this morning and can't seem to type straight....  |
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Post by itsybitsyone on May 12, 2008 9:09:42 GMT -8
They seem to be worse when I'm lying down and are usually triggered by sound or movement. So far, they've been annoying, but not terribly worrying. It was the flashing and fluttering that caught my attention this time.
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This is called synesthesia. There are several types...including the kind you get from hallucinigenic (LSD, Shrooms, et al) drugs. If you are seeing sounds, that's the technical term for the group of things that cause you to see sounds.
Why? I have no idea, except that if they are most pronounced at rest I know narcolepsy can cause it. I am sure that's not the only cause.
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I'd get the feeling of water in one or both ears. That was my signal to sit down somewhere... fast! I'd then just collapse and couldn't move or talk for what seemed like a minute or so. Never lost consciousness and was fine afterwards.
__________________________
Google 'cataplexy'.
I used to have the sensation water was flowing and dripping out my my ear. Also, at times, that water was dripping between my eyebrows. I do not remember, as it was during a VERY dark time for me, if it was related to cataplexy...and yes, in fact it is just the school of life, and being curious about my weird issues that I know about these things...and I think I probably have been the queen of misdiagnosi!!
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Post by cobweb2 on May 12, 2008 20:05:06 GMT -8
Cobby, are you talking about the hand and foot numbness that comes with puking too long (I always get that when I get the sick bouts), or something different? I had no idea you experienced complex partial seizures. Absence seizures are a type of partial seizure; I've wondered before if there was a relation between that and Lyme. I know I've read of children with Lyme sometimes getting actual grand mal seizures ... on that note, I wonder what the instance of adult seizure disorders and borreliosis is.... My spelling wasn't so good- Paresthesias; "Numbness and tingling are abnormal sensations that can occur anywhere in your body, but are often felt in your hands, feet, arms, or legs." There are many possible causes: Remaining in the same seated or standing position for a long time Injury to a nerve -- for example, a neck injury may cause you to feel numbness anywhere along your arm or hand, while a low back injury can cause numbness or tingling down the back of your leg Pressure on the spinal nerves such as that due to a herniated disk Lack of blood supply to an area -- for example, plaque buildup from atherosclerosis in the legs can cause pain, numbness, and tingling while walking (this is called vascular claudication) Other medical conditions, including: Carpal tunnel syndrome Diabetes Migraines Multiple sclerosis Seizures Stroke Transient ischemic attack (TIA) Underactive thyroid Abnormal levels of calcium, potassium, or sodium in your body A lack of vitamin B12 or other vitamin Certain medications Toxic action on nerves, such as that from lead, alcohol, or tobacco Radiation therapy from Medline Plus I only throw up when I'm on Doxy. And I wasn't on Doxy at the time, nor was I throwing up. The whole issue with Lyme Disease is the battle to get control of your body back. You think you are doing everything right to be healthy and BAM-one little tick and it all goes haywire. |
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Post by LymeEnigma on May 13, 2008 9:56:52 GMT -8
I removed the double post. You never got an answer as to the cause of your "electrical" sensations? At least it wasn't a TIA.... Thanks for posting that list; definitely makes me feel a bit more secure about the numbness I get when I get sick. I'm wondering: the full electrical sensation ... did it occur for only a few seconds when you were trying to sit up, or did it last? When my electrolytes used to be off all the time, I used to get this really freaky sensation every once in a while when moving from a lying position to sitting up. It was like electricity was shooting through my body, causing me to twitch as if attached to an alternating current. Maybe you experienced something more similar to that? Sorry if I'm grasping at straws, here ... we all know how much a good mystery eats at me.... |
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Post by cobweb2 on May 14, 2008 13:51:08 GMT -8
Actually they were a fairly frequent occurrence-in clusters.
The sensation would last probably less than a minute-from head to toe. On the day I was taken to the ER they were particularly strong.
They would happen at night in bed, and during the day, sometimes when I was just sitting-in recliner or at computer.
Now I just seem to have a foot neuropothy-on a recent retreat we bathed each other's feet. Warm soak, followed by an exfolliating rub, and oil massage. It was excruciating for me and I could barely tolerate it.
I went along with it-peer pressure I suppose because this was supposed to be such a wonderful thing we were doing. Everyone else loved it. But it felt like she was rubbing cut glass into my feet.
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