Post by 4everhopeful on Nov 6, 2009 9:50:52 GMT -8
I'm repeating the plea from someone else recently.
I was so relieved to find this site now so disappointed it doesn't seem to be active.
I have been ill for many years. I work outside for a living and have had a bulls-eye rash twice in the last 6 years. However, I wasn't able to find out much info at the time. 2 ELYSIA tests were negative. I wasn't aware of the Lyme controversy until recently when someone sent me to the "Under Our Skin" site. I was so happy to think I finally knew what was going on.
I contacted my state Lyme association and got the name of an LLMD and made an appointment.
I'm back pedaling like crazy now. I was so ready to grasp onto any kind of life ring I didn't look to where I might be headed towards.
Today I researched the Dr I am supposed to see, along with the other 3 names given to me for LLMDs in my state. DUH! Why didn't I do that before? I started questioning his intentions when I found out the cost of the first office visit (with no tests included).
Anyway, they all have multiple complaints from patients about medications perscribed and how the patients were treated when they asked questions and so forth.
I'm bummed that a diagnosis of Lyme may not lead to relief of my many symptoms that so far cannnot be explained through any other testing I've had done. I have most all the symptoms Lyme patients have. I've have unexplained heart palps, anxiety attacks, MVP that wasn't there before, low body temp, low grade fevers, fullness in ears, ringing in ears, vision distubances, cognitive loss, all over pain, varying degrees of fatigue and weakness, insomnia, thyroid disfuntion, gall bladder disease, Celiac disease, sudden emotional swings, lingering sore throat, TMJ, mixing up letters when I try to type and on and on......
I have no idea what to do at this point. I do not want to harm my body further by taking massive doses of anti-biotics I may not need. I feel like I'm caught between a rock and a hard place. I know something is going on as I continue to decline. Fortunately, my symptoms ebb and flow which allows me periods, albeit short, of relative normalcy from time to time. The other end of the spectrum is severe pain and fatigue that leaves me bed bound ocaisionally.
So, is anybody out there.........??
I was so relieved to find this site now so disappointed it doesn't seem to be active.
I have been ill for many years. I work outside for a living and have had a bulls-eye rash twice in the last 6 years. However, I wasn't able to find out much info at the time. 2 ELYSIA tests were negative. I wasn't aware of the Lyme controversy until recently when someone sent me to the "Under Our Skin" site. I was so happy to think I finally knew what was going on.
I contacted my state Lyme association and got the name of an LLMD and made an appointment.
I'm back pedaling like crazy now. I was so ready to grasp onto any kind of life ring I didn't look to where I might be headed towards.
Today I researched the Dr I am supposed to see, along with the other 3 names given to me for LLMDs in my state. DUH! Why didn't I do that before? I started questioning his intentions when I found out the cost of the first office visit (with no tests included).
Anyway, they all have multiple complaints from patients about medications perscribed and how the patients were treated when they asked questions and so forth.
I'm bummed that a diagnosis of Lyme may not lead to relief of my many symptoms that so far cannnot be explained through any other testing I've had done. I have most all the symptoms Lyme patients have. I've have unexplained heart palps, anxiety attacks, MVP that wasn't there before, low body temp, low grade fevers, fullness in ears, ringing in ears, vision distubances, cognitive loss, all over pain, varying degrees of fatigue and weakness, insomnia, thyroid disfuntion, gall bladder disease, Celiac disease, sudden emotional swings, lingering sore throat, TMJ, mixing up letters when I try to type and on and on......
I have no idea what to do at this point. I do not want to harm my body further by taking massive doses of anti-biotics I may not need. I feel like I'm caught between a rock and a hard place. I know something is going on as I continue to decline. Fortunately, my symptoms ebb and flow which allows me periods, albeit short, of relative normalcy from time to time. The other end of the spectrum is severe pain and fatigue that leaves me bed bound ocaisionally.
So, is anybody out there.........??
