|
|
Post by newnoggin on Dec 5, 2008 9:45:55 GMT -8
test results: igenex-IGM pos bands 18,23-25,30,31,34,39IGG pos bands 18+++,30++,34+++,41+,45+, vitamin d 25:12, vitamin d 1,25 normal, western blot central florida research IGG pos bands 23,18, flow cytometry=28,fry stains= "many" babesia & bartonella, quest: pos 18IGG, symtoms mainly "psychiatric" except awful neck pain occasionally.local doctor not sure (not llmd).please, any comments or opinions would be appreciated tremendously. not sure if these indicate lyme disease.
|
|
|
|
Post by enochroot on Dec 5, 2008 14:19:54 GMT -8
Sure sounds like you do - based on the western blot. Are you on Doxycycline? Considered the "place to start" by most docs but the other folks here can offer up a lot more advice! Best wishes to you in finding your way outta this  |
|
|
|
Post by LymeEnigma on Dec 9, 2008 15:34:56 GMT -8
It really does sound like Lyme to me, as well, but keep in mind that there are many other diseases out there that can both simulate a Lyme-positive Western blot and cause Lyme-like symptoms. Neck pain is still a problem I deal with, although I haven't had a full "freeze" for many months (where it feels like I've suffered whiplash).
I wish I could tell you where you might go to receive adequate treatment, but you really only have two choices: see a mainstream doctor, who follows IDSA guidelines, and most likely get blown off, or see a "Lyme literate" doctor, and get put on antibiotics (and God knows what else) for several years ... maybe even the rest of your life. I compare myself to those who have been on antibiotics for five or more years, and really I don't see any of them any better off than I.
I'm really sorry you're going through this. We need to push for education, early diagnosis, and more research, so future generations do not have to suffer in such a way.
|
|
jill
Welcome Newbie!
Posts: 1
|
Post by jill on Mar 25, 2011 18:25:28 GMT -8
I just joined here and am new at this. I looks to me the last posts were in 2009? Is anybody here??? I read moderator's article and wanted to chat. Are you here anymore Lyme Enigma??? Unfortunately, I don't have internet where I am staying, I am house sitting this week so I am all over the internet about Lyme disease and I liked your article you posted, which BTW I left you a mssg.
Anyhoo, I hope you are still doing better.
Sincerely, Jill
|
|
|
|
Post by enochroot on Mar 29, 2011 1:13:31 GMT -8
Jill -
Sorry to see this board has gone dormant. It was one of the best on the internet!
There is a lot of good information here, take the time to cruise the threads.
|
|
