Post by LymeEnigma on Sept 6, 2008 9:20:36 GMT -8
www.natcaplyme.org/index.php?module=Pagesetter&func=viewpub&tid=8&pid=1
What we are doing
We have an historic opportunity to brief Congress on Lyme disease. With the help of Senators Dodd and Lieberman, we have a luncheon briefing scheduled in the Senate Russell Office Building on September 24. All members of Congress are invited. Speakers will feature Andy Wilson, director of Under Our Skin, and Pamela Weintraub, author of Cure Unknown:Inside the Lyme Epidemic. Clips from Under Our Skin will be shown.
How you can help
Invite
1. FIRST AND MOST IMPORTANT: Invite your Senators and Congressmen:
# Find your members at www.congress.org by zip code, or click below.
# Telephone, email, write a letter, or best of all, schedule to meet with them in person in their home district office while they are home on recess in August
# Ask them to attend the briefing. If they cannot attend, request they send their senior staff. Congressmen are the most responsive to requests from their own constituents.
Your voice is vital to success!
2. DONATE
# Sponsors are needed to provide the book Cure Unknown and the full length DVD of Under Our Skin to all 535 members of Congress.
# OPEN EYE PICTURES has made the UNDER OUR SKIN DVDs available for this program at a special discounted rate. ST.MARTIN’S PRESS has made CURE UNKNOWN available at a special bulk wholesale book price.
# You can even include a personal note to your own congressman! Make a tax-deductible donation and submit your personal message at www.NatCapLyme.org/contribute. Or, you can send your donation and note to NatCapLyme by mail to P.O. Box 8211 , McLean , VA 22106-8211.
# It will cost $17,000 to provide copies to all members of Congress. We need donations by Aug. 30 to have the DVDs and books in time.
NO DONATION IS TOO SMALL!
Why it’s important
It has been over fifteen years since the US Congress has investigated Lyme disease, its diagnosis, treatment, and the issues surrounding its late-stage form. Every two years a new congress is formed. Lyme disease bills have been introduced repeatedly, but none have passed. We wish to raise awareness and request a new congressional hearing so that our legislators can facilitate unbiased research. To quote Pam Weintraub in Cure Unknown, “…if we are ever to unravel the mysteries of Lyme disease and find a cure, it is science—pure and unadulterated—that will lead us home.”
The release of the documentary film Under and Skin the book Cure Unknown present the Lyme community with an unprecedented opportunity to educate our federal elected officials about the disease and the incredible toll it takes in human suffering.
Let’s all work together toward this important goal that will benefit everyone affected by Lyme and Tick-Borne disease.
Here are links to the Film and the Book
Film: Under Our Skin:
www.underourskin.com/
Here’s the trailer:
www.youtube.com/watch?v=sxWgS0XLVqw
Here’s a longer clip:
snagfilms.com/films/title/under_our_skin/
Cure Unknown: The Lyme Epidemic
www.cureunknown.com
From the Sue Vogan radio show:
Lawyer Gregg Skall, National Capital Lyme Disease Association legal counsel, will be returning to Short Order on Monday, August 25th at 9PM EST on www.contacttalkradio.com to discuss how things are progressing with the Congressional briefing to be held on September 24
Call in with questions at 1-877-230-3062. Gregg will be prepared to answer your questions on the Lyme Briefing so call in with all your questions and tell Lyme concerned friends around the country to call in too.
The Experts of Lyme Disease: A Radio Journalist Visits the Front Lines of the Lyme Wars - order at www.lymebook.com
In Short Order www.contacttalkradio.com The ONLY dedicated Lyme disease broadcast
______________________________________________________
This could be a great opportunity. Just the same, I'm not sure what to think, here. While I am glad that there is going to be a briefing available to all Congress members, I am uncertain about some of the line-up. We could be shooting ourselves in the foot by giving each member a copy of Under our Skin ... and will Sue Vogan be playing a part in this?
I know many people in the Lyme community feel that Under our Skin was a masterpiece, but I've seen it and I honestly don't think it has the capacity to help our cause. While it contains some really great segments, there are actually some that, I believe, could cause more harm than good. I was not impressed with Mandy, and I know I'm the minority in this ... but if I, a Lyme patient, who knows just how bad it can get, got the impression that the woman was exaggerating her symptoms (not faking, just being a little hysterical about them), someone going into this with a chip on his/her shoulder may very easily see nothing but malingering and/or pure hysteria. That would be really, really bad.
If anyone has the time and energy to call Gregg (1-877-230-3062) and ask for specifics, that would be great. I have terrible telephone anxiety (ask Nancy); I can't even make my own doctor appointments. I really would like to know more about this, though. If the line-up is to consist even mostly of rational minds, I would like to support the briefing.
Also, it kind of bothers me that the Under out Skin producers aren't willing simply to DONATE all of the DVD's to Congress, that -- once again -- the sick and financially tapped are being called upon to fund this.
Any thoughts?
What we are doing
We have an historic opportunity to brief Congress on Lyme disease. With the help of Senators Dodd and Lieberman, we have a luncheon briefing scheduled in the Senate Russell Office Building on September 24. All members of Congress are invited. Speakers will feature Andy Wilson, director of Under Our Skin, and Pamela Weintraub, author of Cure Unknown:Inside the Lyme Epidemic. Clips from Under Our Skin will be shown.
How you can help
Invite
1. FIRST AND MOST IMPORTANT: Invite your Senators and Congressmen:
# Find your members at www.congress.org by zip code, or click below.
# Telephone, email, write a letter, or best of all, schedule to meet with them in person in their home district office while they are home on recess in August
# Ask them to attend the briefing. If they cannot attend, request they send their senior staff. Congressmen are the most responsive to requests from their own constituents.
Your voice is vital to success!
2. DONATE
# Sponsors are needed to provide the book Cure Unknown and the full length DVD of Under Our Skin to all 535 members of Congress.
# OPEN EYE PICTURES has made the UNDER OUR SKIN DVDs available for this program at a special discounted rate. ST.MARTIN’S PRESS has made CURE UNKNOWN available at a special bulk wholesale book price.
# You can even include a personal note to your own congressman! Make a tax-deductible donation and submit your personal message at www.NatCapLyme.org/contribute. Or, you can send your donation and note to NatCapLyme by mail to P.O. Box 8211 , McLean , VA 22106-8211.
# It will cost $17,000 to provide copies to all members of Congress. We need donations by Aug. 30 to have the DVDs and books in time.
NO DONATION IS TOO SMALL!
Why it’s important
It has been over fifteen years since the US Congress has investigated Lyme disease, its diagnosis, treatment, and the issues surrounding its late-stage form. Every two years a new congress is formed. Lyme disease bills have been introduced repeatedly, but none have passed. We wish to raise awareness and request a new congressional hearing so that our legislators can facilitate unbiased research. To quote Pam Weintraub in Cure Unknown, “…if we are ever to unravel the mysteries of Lyme disease and find a cure, it is science—pure and unadulterated—that will lead us home.”
The release of the documentary film Under and Skin the book Cure Unknown present the Lyme community with an unprecedented opportunity to educate our federal elected officials about the disease and the incredible toll it takes in human suffering.
Let’s all work together toward this important goal that will benefit everyone affected by Lyme and Tick-Borne disease.
Here are links to the Film and the Book
Film: Under Our Skin:
www.underourskin.com/
Here’s the trailer:
www.youtube.com/watch?v=sxWgS0XLVqw
Here’s a longer clip:
snagfilms.com/films/title/under_our_skin/
Cure Unknown: The Lyme Epidemic
www.cureunknown.com
From the Sue Vogan radio show:
Lawyer Gregg Skall, National Capital Lyme Disease Association legal counsel, will be returning to Short Order on Monday, August 25th at 9PM EST on www.contacttalkradio.com to discuss how things are progressing with the Congressional briefing to be held on September 24
Call in with questions at 1-877-230-3062. Gregg will be prepared to answer your questions on the Lyme Briefing so call in with all your questions and tell Lyme concerned friends around the country to call in too.
The Experts of Lyme Disease: A Radio Journalist Visits the Front Lines of the Lyme Wars - order at www.lymebook.com
In Short Order www.contacttalkradio.com The ONLY dedicated Lyme disease broadcast
______________________________________________________
This could be a great opportunity. Just the same, I'm not sure what to think, here. While I am glad that there is going to be a briefing available to all Congress members, I am uncertain about some of the line-up. We could be shooting ourselves in the foot by giving each member a copy of Under our Skin ... and will Sue Vogan be playing a part in this?
I know many people in the Lyme community feel that Under our Skin was a masterpiece, but I've seen it and I honestly don't think it has the capacity to help our cause. While it contains some really great segments, there are actually some that, I believe, could cause more harm than good. I was not impressed with Mandy, and I know I'm the minority in this ... but if I, a Lyme patient, who knows just how bad it can get, got the impression that the woman was exaggerating her symptoms (not faking, just being a little hysterical about them), someone going into this with a chip on his/her shoulder may very easily see nothing but malingering and/or pure hysteria. That would be really, really bad.
If anyone has the time and energy to call Gregg (1-877-230-3062) and ask for specifics, that would be great. I have terrible telephone anxiety (ask Nancy); I can't even make my own doctor appointments. I really would like to know more about this, though. If the line-up is to consist even mostly of rational minds, I would like to support the briefing.
Also, it kind of bothers me that the Under out Skin producers aren't willing simply to DONATE all of the DVD's to Congress, that -- once again -- the sick and financially tapped are being called upon to fund this.
Any thoughts?