jarla
Contributing Member
Posts: 37
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Post by jarla on Nov 11, 2008 7:00:05 GMT -8
I'm having a bunch of neurological issues. Bumping into things. Clumsiness. Cutting or burning myself when I'm cooking. The most annoying is that I'm having trouble communicating. Casual conversations aren't too hard. But more in depth discussions are tougher. And I'm having a lot of trouble writing, which is probably why I don't post too often. It feels like there's a loose circuit between the thoughts in my head and getting them out on the page.
So I'm getting an MRI on Thursday. Is this a useful thing to do?
And I'm trying to find a neurologist who understands Lyme. I'm hopeful that I'll find one in the Chicago area, or even lower Wisconsin, but I'd be surprised if I do.
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Post by nyxie63 on Nov 13, 2008 3:04:51 GMT -8
Good luck today! A Spect scan would probably be more useful, but an MRI isn't a bad idea. It might show lesions or swelling. If they don't offer, ask for a CD of the scan when you check in. They can give it to you right after the scan's done. The report won't be ready for a few days tho. I've had hours of fun looking at the inside of my own head and comparing it to neuroimaging websites. It's good to have a hobby. ;D You could also contact local lyme support groups and see if they can recommend anyone in the area. If that fails, grab the yellow pages and start calling neuro offices.
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Post by LymeEnigma on Nov 13, 2008 11:15:37 GMT -8
I hope that the MRI gives you some answers. I know my twin sister is going in on Saturday for a CT with contrast, to check for MS or other possible issues. I have heard mixed results regarding the various scans; just like anything else related to this illness, diagnostics are nothing short of a pain in the rear, and their usefulness varies from person to person.
Good luck, today. Just FYI: if you get an injection of contrast, it can cause some very strange sensations, the weirdest of which being the feeling that one has wet oneself. Rest assured that it is just the contrast, and not your bladder!
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jarla
Contributing Member
Posts: 37
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Post by jarla on Nov 13, 2008 19:56:30 GMT -8
Well I got the MRI and reacted fine to the contrast. I'll get a report in a few days. As best as I can tell on my own, it's not showing anything problematic. I didn't realize how difficult it would be to read.
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Post by cobweb2 on Nov 14, 2008 10:35:33 GMT -8
Jarla- sorry I am delayed in responding. My MRI was kind of ridiculous- for one thing I was freezing during the test-and I hope you were prepared for all the clanking that goes on-sounded like the machine needs some FD40.
Anyway- my MRI was inconclusive because of "artifact motion", which basically means I was shivering throughout. DUH And I thought I would get a nice warm hospital blanket to cover me-NOT.
A SPECT SCAN ,which was much easier to handle, was more conclusive-and paved the way for insurance to cover 999 days of IV Rocephin-but I only did IV for 8 months.
A lyme literate neuropsychologist , in PENNA,ordered the Spect.
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Post by enochroot on Nov 16, 2008 22:38:00 GMT -8
I had an MRI back in Feb, to rule out things. Tedious but far from the worst test! The neuro I saw recently gave me a truly gruesome test where they stick needles into your muscles and shock you oooh was that one fun Mine came back "unremarkable" doc speak for nothing noticable. It is like Nyxie said a good idea to get a copy - if only for future reference/comparisons should you have another someday. Are you still seeing Dr Cameron? And Cobby "A lyme literate neuropsychologist , in PENNA" I may just have to eat the travel for that one of these days...
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Post by LymeEnigma on Nov 20, 2008 13:10:25 GMT -8
Any word, yet?
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jarla
Contributing Member
Posts: 37
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Post by jarla on Nov 21, 2008 21:59:31 GMT -8
yes, everything looked normal, which I think is a good sign.
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Post by LymeEnigma on Nov 22, 2008 3:44:40 GMT -8
My sister's CT also came back normal. At least you don't have any visible lesions ... that's definitely a good thing.
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Post by cobweb2 on Nov 23, 2008 18:44:29 GMT -8
OOOPS- I take that back Enoch-She was just a lyme literate psychiatrist. Scratch the 'neuro' part. But she sure had my neuro symptoms nailed.
Sorry to get your hopes up .
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