Post by nyxie63 on Nov 2, 2008 2:29:51 GMT -8
I'm so stinkin' frustrated!!!!
Been having what I call 'wake-n-shakes' since April. I'll wake up in the middle of the night and (usually) my right hand will be having huge tremors. Sometimes I'll wake up and then the tremors will start. Occasionally, it'll also involve my jaw. It'll start trembling and then the hand thing will start. I've even had one full-body episode of this. I'm perfectly aware of what's happening when it's happening. The cycle is wake up, hand (or whatever body part) goes wubba-wubba-wubba, then I fall back to sleep again right away. Sometimes it only hits once, other times this will hit 3-4+ times a night.
This is the whole reason I got the sleep study in the first place! Did the sleep study back on Sept 11-12th. Takes a whole 6 weeks to get the results back. Oy.
Heard back from the neuro (finally!) this week. Everything came back fine on the polysomnogram. No mention of the multiple wake-n-shakes that happened during the study.
Asked the neuro about the wake-n-shakes. He said they were probably sleep paroxysms and sometimes very difficult to detect. No further info, even when prodded. Thanks doc. *grumblemutter*
The MSLT came back with a dx of 'moderate excessive daytime somnulance (EDS - not the flexy one)'. Fell asleep during all 4 nap periods in under 7 minutes and reached stage 2 sleep in all but one of them. From what I understand, that's not normal. The neuro rx'd Provigil to help with the EDS.
The good news is no sign of apnea or narcolepsy.
So anyway, according to the neuro, I'm supposed to take the Provigil, see if that helps eliminate the wake-n-shakes, and if it doesn't he'll refer me to a sleep specialist.
Dunno how in a pill that's supposed to keep me awake is going to help me sleep or deal with the tremors. But who knows? If the wake-n-shakes are really what I think they are, this pill ain't gonna help.
From what reading I've done on the subject (and there isn't much out there specifically on 'sleep paroxysms') it could either be some form of parasomnia (which doesn't explain why I'm awake and aware of what's going on) or something funky's going on in my frontal lobe (which could explain why nothing's being detected). Loves me a good run-on sentence. ;D
Additional note: When I had the EEG done earlier this year, during the hyperventilation part my jaw started to have minor tremors. The interesting part is nothing showed on the EEG during that time either, which sort of has me pointing towards frontal lobe funkiness.
Need to get my sticky little hands on a copy of that sleep study!
So, even after the sleep study and all those weeks of waiting, it doesn't look like I'm any closer to an answer. Feh!
Been having what I call 'wake-n-shakes' since April. I'll wake up in the middle of the night and (usually) my right hand will be having huge tremors. Sometimes I'll wake up and then the tremors will start. Occasionally, it'll also involve my jaw. It'll start trembling and then the hand thing will start. I've even had one full-body episode of this. I'm perfectly aware of what's happening when it's happening. The cycle is wake up, hand (or whatever body part) goes wubba-wubba-wubba, then I fall back to sleep again right away. Sometimes it only hits once, other times this will hit 3-4+ times a night.
This is the whole reason I got the sleep study in the first place! Did the sleep study back on Sept 11-12th. Takes a whole 6 weeks to get the results back. Oy.
Heard back from the neuro (finally!) this week. Everything came back fine on the polysomnogram. No mention of the multiple wake-n-shakes that happened during the study.
Asked the neuro about the wake-n-shakes. He said they were probably sleep paroxysms and sometimes very difficult to detect. No further info, even when prodded. Thanks doc. *grumblemutter*
The MSLT came back with a dx of 'moderate excessive daytime somnulance (EDS - not the flexy one)'. Fell asleep during all 4 nap periods in under 7 minutes and reached stage 2 sleep in all but one of them. From what I understand, that's not normal. The neuro rx'd Provigil to help with the EDS.
The good news is no sign of apnea or narcolepsy.
So anyway, according to the neuro, I'm supposed to take the Provigil, see if that helps eliminate the wake-n-shakes, and if it doesn't he'll refer me to a sleep specialist.
Dunno how in a pill that's supposed to keep me awake is going to help me sleep or deal with the tremors. But who knows? If the wake-n-shakes are really what I think they are, this pill ain't gonna help.
From what reading I've done on the subject (and there isn't much out there specifically on 'sleep paroxysms') it could either be some form of parasomnia (which doesn't explain why I'm awake and aware of what's going on) or something funky's going on in my frontal lobe (which could explain why nothing's being detected). Loves me a good run-on sentence. ;D
Additional note: When I had the EEG done earlier this year, during the hyperventilation part my jaw started to have minor tremors. The interesting part is nothing showed on the EEG during that time either, which sort of has me pointing towards frontal lobe funkiness.
Need to get my sticky little hands on a copy of that sleep study!
So, even after the sleep study and all those weeks of waiting, it doesn't look like I'm any closer to an answer. Feh!