Glad to have found this

[seekinganswers]

I am new here. I found my way via your blog "redefining Lyme." BRAVO. I can't tell you how impressed, and grateful, I was for that essay. I've been going through a nightmare of conversations with "experts," none of whom agree with one another, and trying to make sense of it all. I've had the reaction that I'll just need to delve into the medical journals myself to be able to determine what I think is the right point of view - what a lot to ask of a patient.

How nice it would be to find a doctor who could first FRAME THE ISSUES before taking a position. e.g., "Some people in the medical community subscribe to post-lyme theory, while others subscribe to a theory of chronic lyme. Let me describe both, and then tell you what I think." No. Instead you get an adamant "The symptoms you'll continue to feel after your treatment are because of post-lyme." If you didn't already know the controversy, you're left to try to weave together the contradictions between the point of view you just heard and the one you heard from another doctor yesterday.

And online, I've struggled to find an INTELLIGENT assessment of what's going on. Yours was that - intelligent, one that clarifies. Thank you. I look forward to spending time on this forum.

[LymeEnigma]

Welcome, seekinganswers! I'm glad that you found my essay helpful. Too many of us have been down that road ... the contradictions, the belittlement, the downright lies ... how grateful I would be, even at this point, for a doctor willing to take a humble approach, and just admit, "we don't know."

Too many of us are forced to become armchair researchers, despite the mental deficits, and that's just not fair. Too many of us find ourselves continuously at square-one, no matter how many doctors we see, and I personally am far too disillusioned with medicine, as a whole, to trust what any practitioner has to say about my condition. It is my hope that, despite our difficulties and the downright opposition many of us face from the medical community, the truth is still available for us to find, if only we search long and hard enough.

There are new advances being made all the time, and yet the medical community continues to move in circles, rediscovering information that should have been disseminated long ago. I hope to change that ... but it has been a long road, and the light at the end of the tunnel is still but a pinprick in the distance. I'm grateful that I don't have to face the darkness alone.

Again, welcome.

[enochroot]

Yeah , what she said
LE - For a woman who is so underperforming due to her illness I can only wonder how
incredibly sharp you must be when you are in good health!

[LymeEnigma]

You're making me blush....