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Post by itsybitsyone on Aug 26, 2008 7:38:08 GMT -8
I have not being doing a lot of research lately on Lyme. I am frustrated by the lack of answers. I got sidetracked by Ehlers-Danlos Syndrome thanks to Finnette, who is a real firecracker in real life. I'm supposed to be seeing a rhuemy in October for this, provided I do not lose my job in the meanwhile... I then get further sidetracked by my myspace page, personal issues, PTSD and other stuff. Then I become interested in the research being done on the scams. That I find interesting indeed. For those who didn't see the link I posted on LNE about a scambuster who is one of the best: www.stopkaz.comwww.stopsylviabrowne.comCheck those out, as it is like a lesson in how to be more affective. I think I am spread too thin. Or that I am exhausted from reading and learning abstracts. I have gotten my fill of the history, the controversy, the inner controversy... What more is there to learn that we have available?? I want to have more effective things to say but the well seems dry. Where do you go next when you feel tapped??
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Post by cobweb2 on Aug 26, 2008 9:06:49 GMT -8
"Where do you go next when you feel tapped?? " Just bloom where you are planted! Reminds me of delicate purple flowers growing up out of a crack in the sidewalk.
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Post by LymeEnigma on Aug 26, 2008 9:42:49 GMT -8
I know exactly what you are going through, Nancy. It truly does feel, sometimes, like running around in circles is a big part of being a Lyme armchair researcher. There really has been little new information ... it is almost as if certain aspects of the disease are "rediscovered" every so many years, only to be forgotten somewhere between the controversy and the dogma. The information reemerges, perhaps explained in slightly different ways, and then once again it falls back into the fold.
BUT, there are researchers still attempting to fit more pieces into the puzzle; it seems that grants and certain interest groups keep a lid on some of it, but fresh, new articles do come out every once in a while. I have to keep hope that new directions will continue to present themselves, so that we might do less running around in circles and more cohesive connecting and analyzing of new and relevant data.
I wonder if there is a way we, as patients, might influence research directions? Haku and I have both made this point before: if all of the money that had been donated to the Jones defense fund had been donated instead to research grants, we could have had top minds paid up, doing the research that we want and need, for a good couple of years....
Of course, that entails spreading things even thinner than they are ... and it seems to me that none of us has an empty plate right now.
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Post by LymeEnigma on Aug 26, 2008 10:14:53 GMT -8
GREAT links, BTW, Nancy.
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