Feeling Like a Sack O' ****

[enochroot]

Greetings all - my son got his pins taken out of his leg bones
and now has a regular cast with a bone growth stimulator.
;D

As for me, since last week, been feeling far lousy-er...Not
sure what's up(greater fatigue, bodyache, and return of
low grade fever coming and going) I stopped some of my herbals
to see what role that may play, as it may be a coincidence
this began when I started a new kind of Transfer Factor, which
I stopped after 3 days.

Considering holding off on the new antiviral I got my GP to give
me (after I gave him my current CFS research)just to not
muddy the waters.

[cobweb2]

"I stopped some of my herbals
to see what role that may play, as it may be a coincidence"

and there in lies the rub-how do we sort it all out???

[LymeEnigma]

Enoch, I stopped my herbals, too, and I've fallen into the same boat ... I've had a couple of days in which I've gotten up and felt pretty decent, but (like today, for example) I'm up and down. Today I have a headache and achy neck/back.

Sorry you ended up only taking the Transfer Factor for a few days. Hopefully it didn't set you back to far.

[nyxie63]

Glad your son's on the mend!

Besides going off the herbal wagon or the TF, could it possibly have something to do with the Prednisone (sp?) shot? Wondering if that didn't stir up any bugs you had left.

[itsybitsyone]

Sorry you feel like poop.

I hope you are feeling better. Maybe it is the pred? Pred does supress the immune system, and you'll feel real good at first but then later not feel so well.

I was telling the others, though, to have the whole iron panel done, not just an RBC...cause you could have underlying anemia of chronic disease and not know it. Maybe ask them?

[enochroot]

My injection was 20 days ago, the doc told me an "advantage" of a shot vs orals
is less systemic effect, as it is right into the area concerned. Who knows?

[LymeEnigma]

It might be worth a little more research. If the steroid is responsible for your increase in symptoms, it might be dangerous for you to continue with the injections. Are you feeling any better?






*edited to change "id" to "is"....

[enochroot]

The injection provided marginal improvement - some pain relief in the neck, but
no effect on numbness in my left arm.
Going to a NYC PT place, can't say it has done much yet.

This past week and a half feeling really worse (pain / fatigue) still going to work!
Stopped all my supplements except basic multivit, just to see what happens...
Started the Famvir today as well.

[cobweb2]

My PCP suggested cortisone shots for my arthritic right knee-but I declined the invitation.

I would also like to thank you for allowing us to follow the progress of your son. We all need that kind of awareness- HEALING does happen.

[LymeEnigma]

Let us know how the Famvir goes. Is it less expensive than some of the other antivirals?

I did a small search on Famvir, and a thought hit me as I was reading what is likely listed on all antiviral fact sheets: "It slows the growth and spread of the herpes virus so that the body can fight off the infection. Famvir will not cure herpes, but it can lessen the symptoms of the infections." www.drugs.com/famvir.html

I wonder how long it takes for one's body to fight off a viral infection ... or does it just put the virus into remission, only for it to reappear years later when it feel that the "coast is clear?"

[enochroot]

Thanks Cobby, my son will get better for sure...

As to antivirals, the theory as to CFS is that the immune system is out of whack
and a virus is predominating - one you most likely already had - so if the
theory holds (who knows?) you are using the antiviral to restore the
Mexican standoff. (!)

[LymeEnigma]

Interesting ... kind of like what some Lymies are doing with their aintbiotics....

Any idea how long you're going to have to take the antivirals before the balance returns?

[enochroot]

Depends if it is even the case
Most research I have read says - if you do not notice improvement in a month,
you may want to discontinue - If you do, then continue for up to 6 months
All a big experiment, so who knows?
As long as I do not notice any "reaction" symptoms to the Famvir I feel
it is worth a try.

[LymeEnigma]

I don't see it as any less viable than my six-month trial of azithromycin. I hope you're keeping a symptom log, enoch.

[cobweb2]

This may or may not have any relevance

My WBCs were down from the first blood work,even before starting antibiotics , and for a very long time, months and months into treatment.

When I asked LLMD about this I was told that it was either an indication of a viral infection or a compromised immunity system.

Finally she prescribed Echinacea- 1pill 2x daily. She clarified that most people take it in short bursts to fight off a cold, but I should take it long term on a regular basis. Since my WBCs have been down for so long.

My WBCs are now back up in the normal range , and have been for about 6 months. I have never taken antivirals.